You may want to look into it if you have insurance. C=bh JIJSOCJr H&b=260521, there you will find links, a Behcet's Chat Plaquenil oct image Can plaquenil cause eye problems Withdrawal from plaquenil Efficacy of plaquenil treatment for rheumatoid arthritis Because Behcet's is a rare disorder, it may be difficult to find others with the disease. Ask your doctor about support groups in your area. If it's not possible to connect with someone close, the American Behcet's Disease Association offers message boards and chat rooms where you can connect with other people who have Behcet's. Behcet’s syndrome is a form of vasculitis—a family of rare disorders characterized by inflammation of the blood vessels, which can restrict blood flow and damage vital organs and tissues. Behcet’s affects blood vessels of all sizes and types, and can potentially involve any organ, including the brain and spinal cord. Joanne Zeiss is the woman who has had the disease for 20 years and has co-written a number of books related to the disease. i have behcets. i'm on colchichine and plaquenil which keeps most of the constant mouth sores at bay. There are two behcets lists on yahoogroups. i think if you search on behcets; you will see both groups. She has 2 books which you can buy new or very inexpensively used on amazon and learn a great deal about the drug. You will want a opthamologyst better neuro-opthamo to follow you because uveitis and scarring through not monitoring can be a real problem. C=bh JIJSOCJr H&b=1416735, where there are volunteer hosts and individuals chat on Wednesdays and Saturdays, 4 pm to 8 pm EST. Joanne Zeiss is the woman who has had the disease for 20 years and has co-written a number of books related to the disease. i'm on colchichine and plaquenil which keeps most of the constant mouth sores at bay. i think if you search on behcets; you will see both groups. Plaquenil behcet's Hydroxychloroquine Efficacy on Behcet's Disease Thrombosis., Behcet’s Syndrome - Vasculitis Foundation Is chloroquine an anitbioticNatural treatments plaquenil hyperpigmentationPlaquenil drug rashPlaquenil nail discoloration Behcet's syndrome can affect many different parts of your body. Learn the symptoms of this disease, and how it's treated. Behcet's Syndrome How It Can Affect Your Body. Is there a forum for Behcet's Syndrome? - Autoimmune.. Vision Problems and Autoimmune Disorders - Autoimmune.. Because there isn't a clear cut test for diagnosis the Doctors have to rule out other possible condition and Lupus is one of them. One of the differences is that many people with Lupus have a positive ANA blood test although some don't and this is not the case with Behcet's. Although the exact role of inflammation in Behcet's Disease is unknown, it may play a part. Behçet’s Disease is associated with inflammation inside the body. Lab research has shown that an enzyme called phosphodiesterase 4 PDE4, located inside cells, contributes to the inflammation. My current medication list for Behcet's is as follows and appears to be working well for me. Enbrel 50 IM weekly, Colcrys.6mg 3 x daily Prednisone 7mg daily, Plaquenil 200mg 2 x daily. I am extremely sensitive to UV sun rays, particularly on my face.